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My son, Wade, was born with Pfeiffer Syndrome, a genetic disorder that affects development of the skull. It requires repeated surgeries as he grows to reshape his skull, allowing room for his brain...
Blog
When we’re sick or someone we love is sick, it’s only human nature to think only about our own needs. Good policy making, however, requires an “n” bigger than one and public perspectives that balance...
Shared Decision Making and Patient Engagement
Blog
Perhaps one of the earliest precursors to the Patient and Family Engagement movement is the decades-old push to bring shared decision making, or SDM, into common practice in healthcare settings....
Engaging Patients and Families in Policy Making
Blog
A great deal of effort has gone to engaging patients and caregivers in the decisions being made about their treatment and care. There is also a growing interest in engaging patients and families in...

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